NDSC or Bust!

GUESS WHAT?! Moxie and I are headed for the NDSC Convention over in Indianapolis.

Uh-huh, I’m torn between feeling sorry for Mikey (watching Mac-Q on his own along with the farm and shuttling Micah around) and being REALLY DELIRIOUSLY HAPPY!!!!

Poor Mikey…..

meriah nichols july (2 of 2)YAY US!

meriah nichols july (1 of 2)Travel with just one child

I’m one of those super lucky parents that genuinely likes all of my children, and I find them even more enjoyable when they are not together. Like, when I get to hang out with them one-on-one. Moxie being my favorite daughter, well, I’m truly looking forward to being able to spend a lot of time with her, just the two of us.

Long plane ride? Awesome. Getting to navigate everything with her? We’ll have so much fun! I’ll bring a map and we’ll be like Dora.

The part that gets me nervous is the part about meeting all these people that I’ve known for years online, but meeting them for the first time in real life….

My nasally voice

So I’d like to just come out here and have it to be known ahead of time that I have a really nasally voice.

It’s kind of awful really, very unsexy, right up there with my cankles.  

Okay, so! Got that out of the way, but there is still the…

What if everyone hates me?

I am a little nervous that people will meet me and be all, “YOU ARE SO BORING! And your voice! So nasally! Get thee back to cyberspace!

But I’m just going to take a deep breath and look at my girl (who I really enjoy spending time with) and remember why I’m there in the first place: to learn about things that are related to the syndrome that she has, to connect with people that want to connect and to meet a whole lot of adults with Down syndrome

The deaf piece

NDSC has me all set up with an interpreter – woot!

I’m also digging the NDSC app, trying to get a sense of what I really want to catch so that I can plan for the interpreter. I also want to remind everyone/anyone who might be reading (who I might meet there) (who won’t hate me) that I am NOT having a love affair with your mouth at any time; I really do lipread, please go easy on me without draaaaaaaaaaaaaaaaaaaaaaaawwwwwwwwwwwwwwing eveeeeeeeeeeeeeeeeeeerything ouuuuuuuuuuuuuuuuuuuuuuut.

We’ll find a way to make it happy, I’m sure.


That’s about it – are you going too?

Yeah? How will I know you?


Meriah is the deaf, single mom of 3 kids (one gifted 2E, one with Down syndrome). A longtime career counselor, teacher and disability advocate, she loves helping to create community and empower parents, people with disabilities (and of course, parents with disabilities).

No Comments

  • Mariah: you are delightfully smart, a loving mom, you may perceive your voice as nasily, but having recently spent a LOT of time with you, I can assure you of a few things.

    1) people are going there to collect info, get ideas, and are insecure about their own self perceived inadequacies, to tune in to your anxieties.

    2). These are people who all are focused on one topic. Will anyone be talking about politics, dual diagnosis concerns. Here is the cool part: walk away and find a different group to chat with!

    3). You are way stronger and better than you think you are. Who is going to be focused on what you are wearing, what others might perceive, are you dressed right? Put a smile on that lovely face. Don’t be self conscious of your concerns. Focus on new ideas. Ideas you can take home. The chances of you seeing any of these folks walking down your hometown street are minuscule! If you see them there, are they going to remember you out of the other 3,000 there? No one is going to poke their finger in your direction and yell, “Look at her! She has a nasily voice! (You don’t.). That nasty place was called high school. There will be mature people here and their focus is not on you or Moxie. Their focus will be “Help me be a better mom /dad.” Just like you.

    You are wrapped too tight. Breathe deep. You will go home with more that you arrived with . Breathe in through the nose, out through the lips. Think of a happy place. Have some fun.

    You are a really, really great (not adequate, not floating through life..you are being proactive. You wrestle with three on a daily basis. Enjoy the time with Moxie, and just be sure the slide lock up high is always cinched, because she is an escape artist!

    • Nope, I think that given everything (- we have not been together for very long, long flight, big hotel, downtown area, many people, etc ) it makes more sense to leave her at the dog training center. One of her previous handlers will be fostering her while we are gone, so it’s win/win – she’ll have fun and be with people who know and love her and we can focus on Down syndrome and new connections!

      But I think I”ll bring her next year.

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