Extra HanDSome Brady Bear

We were blessed with Bradyn on September 7th 2014. He came to us 4-1/2 weeks early.While he was in utero we decided not to find out his gender. Also there were indicators of Bradyn having Down syndrome including two Echogenic Intracardiac Focus (calcium spots on the heart) and extra Nuchal (skin on the back of neck) thickness. Even though we found these indicators we decided not to have any prenatal genetic testing because we were going to keep our baby either way.


When Bradyn was born there were physical attributes of him having Down syndrome. It was decided that we would have a Chromosome Analysis done. We got the results confirming that he does have Down syndrome when he was exactly 2 weeks old.


Now Bradyn is almost 6 months old, where has the time gone?!?! A day in the Life with Down syndrome seems like a day in the life of a typical family. I could not imagine our days going any differently. There are differences here and there but for the most part. It seems normal.

Everyday I am woken by our almost 3 year old, Corbin, I try to get him to go back to sleep until 7 am, to no avail. After to get a few more precious minutes of sleep we go down stairs and I get Corbin some breakfast. Sometimes I get some breakfast too, by quickly stuffing it in face, but shortly after. We are not they type of family that stays at home very often. Our Monday, Wednesday, and Friday mornings consist of leaving by 8:30 to get Corbin to Preschool. Often Bradyn and I head home and then have an appointment in our home. The appointments are usually with our Home Health Nurse, Jan, or our Early Interventionist, Karen. Jan or Karen usually stay for an hour, from 9:30 to 10:30am. I then try to get Bradyn to take a nap until we leave to pick up Corbin from Preschool. We get home from Preschool and have lunch. Then it is nap time for both boys.
Nap time goes until 3pm then we go outside and play for a little while, if it is nice enough because Oregon can be quite rainy. My husband gets home from work around 5 and then it is time for a short nap for Bradyn. When he wakes up it is dinner time and family time until bed.
Throughout the day we practice oral exercises, Early Intervention exercises, and play with Bradyn.
Bradyn is quite a happy little guy and we are so in love
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Meriah is the deaf, single mom of 3 kids (one gifted 2E, one with Down syndrome). A longtime career counselor, teacher and disability advocate, she loves helping to create community and empower parents, people with disabilities (and of course, parents with disabilities).

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