Down syndrome Book Resources: 20 Indispensable Books for Parents in the Ds Community: a list of books that are fantastic. Missing any? Add your suggestions in the comments!
Disclosure: There are some affiliate links below, but these are all highly recommended books, all of which have been personally verified and/or personally read.
Down syndrome Book Resources: some parents feel like they can never get enough.
That makes sense, given the fact that Down syndrome is still not fully understood, and that for most of us parents, our child with Down syndrome is our entry into the world of Down syndrome, Development Disability and sometimes Special Needs*(see note below).
Our child is our guide, and wanting to understand more, we seek out all of the books we can get our hands on.
I myself purchased or reviewed all of the books listed below.
The ones that I most highly recommend I have put an * before.
Your local library should offer most of these books, and/or your local Down syndrome Association – if they don’t, request that they purchase them!
Most are also easily available through Kindle (on Amazon) or Nook (Barnes and Noble). The medical/education books may be available through your child’s school or you can request them to purchase it as a part of your child’s IEP.
Down syndrome Book Resources
* http://downsyndromepregnancy.org/the-pregnancy-book/ – free downloadable book + ripping site with resources
* The Parent’s Guide to Down syndrome: Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood
* Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives – 10th Anniversary Edition (updated, with more stories) – this is a MUST-read
* Up Syndrome (a memoir by a woman with Down syndrome)
My Heart Can’t Even Believe It: A Story of Science, Love and Down syndrome
Read Book Reviews:T21 Writers Alliance
* Note: “Special needs” and “disability” are commonly used interchangeably. This is incorrect.
A “special need” is an outdated educational term referring to an individual’s unique educational need, as defined through an IEP. A “disability” is a way of seeing, hearing, speaking, thinking, behaving, moving, feeling that is less common than most.
The words are NOT interchangeable, and the word “disability” is not a bad word. Please use it to refer to your child’s Down syndrome. For more information on disability vs “special needs”, please read this post.
Meriah is the deaf, single mom of 3 kids (one gifted 2E, one with Down syndrome). A longtime career counselor, teacher and disability advocate, she loves helping to create community and empower parents, people with disabilities (and of course, parents with disabilities).